Calories

I’m frustrated. What else is new? As you know, Illyana and I spent 18 days on the hospital recently. All sorts of tests were ran and it was decided that there is nothing wrong with Illyana, she simply does not consume enough calories. Except that it took 18 days of trauma for this to be determined. She had a tube in her nose forcing formula into her. The tube had to be inserted multiple times because they struggled to tape it to her face in such a way that she couldn’t pull it out. She had blood work done three times. Eating became a bigger deal than I would like it to be. Our sleep schedule was disrupted. Daily she would be woken up after falling asleep by a medical professional needing something. At night she was still poked and prodded although she, thankfully, slept through most of those. She got even less sleep than she does on a regular basis. I had to hold her flailing little body down until she would relax into sleep. If she awoke in the night, she sought me out, seeking reassurance she wasn’t alone. And after 18 days of unknown territory, with stressful visitors, we were told to carry on as we were previously. Except those 18 days changed everything. Nine months of sleep training is out the window. Illyana is terrified if I am out of sight. She will still only fall asleep touching me. She slept through the night at the hospital. Last night she was awake every hour. Our routine is gone and we are re building it. But our routine also took months in the making. We took 2 weeks to get used to going to daycare. He went for half day last week but our getting there routine is gone. We are back to work/daycare tomorrow and I don’t know how our morning will go (let’s be honest, I never know, but I m even less sure now). We missed Illyana's vaccinations because we were in the hospital. Vaccinations have never bugged her, she’s always carried on with her life. This set has her with fever – is that the vaccinations, that she is run down or that it scared her more? I don’t know but fevers are not conducive to getting more calories in her as she doesn’t eat when she's not feeling well. Maybe the mot frustrating part is that I have been told to carry on with what I was doing. There is nothing medically wrong with her and physically, there is no reason why she doesn’t eat well. This means that there are no suggestions to offer us. The best suggestion is to cheer loudly every time she does something good eating. It is so unnatural and uncomfortable for me to do this. I get that she respond to social praise but it cant be the only way can it? I’m also supposed to eat the same thing as her so that she see me eating it and wants to eat it too. But shes on a high fat diet that I don’t want to be on. She doesn’t sleep so things like dishes don’t get done s much as I would like. I don’t want to cook two (or 3, depending on Nick’s diet)meals. I struggle to make meals as it is. Then I get told that all food is good food and I am a role model for my daughter in how I view food. Sure but adults don’t need the same fat and they wouldn’t be telling m it’s good foo. The whole give her straight fat is a bizarre concept to me. I feel so alone in this adventure. There is so much pressure to gain weight and eat enough food that I stress out when she doesn’t eat well. We are doing weekly weigh ins. What happens if she doesn’t gain appropriately? I still have so many professionals in my life but no one has any concrete suggestions for me. I have been trying g for 7 months, clearly it I not working! I get that it is me and Illyana the need to figure it out together, I just wish someone could help me. I feel like I’m failing. I feel like I’m failing Illyana. I need help but it I not something anyone can help with.