Wednesday, May 4, 2016

Systemic Reform Required

Our system (health, justice, social development, the whole deal) is failing us.  Today I write with a heavy heart.  Today I write in utter disbelief on what we have to deal with.  I write in frustration for the barriers that exist. 

My clientele are homeless or marginally housed.  They are low-income and many are unable to work, for a variety of reasons.  Many struggle with addictions.  Many struggle with disabling conditions of mental health.  Many struggle with both addiction and mental health.  Most have horrific stories that involve sexual abuse, physical abuse, mental abuse, neglect.  Many grew up in foster care.  Many of their families struggle with similar issues.  There are two and three generations of families that frequent our doors.  There are many clients who have diagnosed or undiagnosed physical or mental conditions, such as FASD, Autism, generalized intellectual delay or physical ailments. We have a handful of clients who are wheelchair bound, and more who require the aid of a cane to get around. Our clients are from multiple nationalities, including Aboriginal.  They are seen as less than human, “scum”, worthless members of society, wasting resources, undeserving of support and services, to describe just a few of the phrases I have heard them described as.

Many of my clients do not have a family doctor they can see about any ailments they have.  Many have recently been “fired” from their family doctor.   The stories coming from our guests is familiar: their long-term doctor retired and the new doctor decided they didn’t need their pain killers (it’s an addiction not really required).  These patients, in pain and suffering withdrawal from the powerful narcotics they have been using for many years, escalate and tell the doctor that they need their prescription. They are “fired” for escalating and most likely raising their voice in frustration. They are “fired” for being a junkie.  And within a month, these people take more drastic measures; normally looking like attempted suicide because they cannot live this life anymore.  We call 9-1-1 to help them.  In my experience, the first (and only) responders are the RCMP, who cuff the individual and maybe take them to the hospital but more likely take them to cells.

Without a family doctor, and unable to go into health establishments for “inappropriate behaviour”, our people are left only with the Emergency Room at the local hospital.  The experiences at the hospital have a similar ring to them as well.  “I waited for three hours for them to tell me I am a degenerate and unworthy of their attention.  I waited three hours for them to deny me services.  When I questioned them, stating I am in a need of medical attention, they tell me they will call the RCMP to have me removed”.  I hear things like “they told me my condition did not require medical attention, but I never saw the doctor”.  This happens to males and females, Aboriginal and non-Aboriginals.  It is more noteworthy when we have a guest who is actually seen at the hospital and not just sent away without receiving any care.

There is a distinct lack of services available to the people I serve.  The unit for psychiatric assessment and stabilization, which includes management of chemical withdrawal only has eight beds and the beds are normally full.  We have been told in the last couple of months that chemical withdrawal is no longer a treatment they can provide.  That means that there is nowhere in town that can offer detox services.  We have a centre called “Mental Health and Addiction Services”.  Our guests that have both mental health and addiction issues are turned away at both ends.  Mental health cannot treat them if they are actively using.  Addiction says that they psychosis they experience is not an addiction issue but a mental health issue.  (I do not see why the two teams cannot work together and help find a solution to the problem!).  Our guests also have their files closed at Mental Health and Addiction because they miss appointments.  I understand that the case loads are heavy, but having an understanding of mental health issues or addiction issues will tell you that appointments are hard for people to keep.  These clinicians make no effort to come to the client.  They then have to go through the entire intake process and wait for a clinician to be assigned to them, thus ruining any relationship they may have had with their previous worker.  It is a new thing every time, including telling their story over again to someone they do not know or trust.

We had a woman who had a heroin addiction, and was using heavily.  She knew she was in trouble.  She tried to get into the psychiatric treatment ward, whose mandate states the unit is “to provide psychiatric assessment and stabilization, including management of chemical withdrawal” but was told there were no beds.  She called the next town and put herself on the waiting list for the detoxification centre there.  She wasn’t sure how she would get there but knew she needed to help herself.  She overdosed several times, requiring the use of a defibrillator.  She showed up at the homeless shelter and asked us to clean the wound caused by one of the defibrillators.  The wound was infected (I did not see it but a nurse who works with us described it as the grossest thing she has ever seen).  We told this woman she needed to go to the hospital for treatment.  She said she couldn’t go there again, that she didn’t receive treatment in the past.  We sent a staff member with her and she had the wound cleaned and was given antibiotics.  The doctor at the hospital gave a referral for medical supplies so that she could clean and dress her chest wound herself (or, I guess, have the staff at the homeless shelter do it).  As she couldn’t afford to buy the supplies, she had to put in an application to the Ministry of Social Development for emergency medical supplies funding.  The hoops that had to be jumped through to keep this wound clean!  It was a good thing that we were there to help her because there were a lot of steps to getting funding to provide the supplies needed.  It wasn’t even a week after we learned of her infection that she passed away.

We had a man who had been living in his own place for about two months.  He came back to the shelter incredibly sick.  He was delusional and hallucinating.  He was weak and barely able to walk.  He was coughing up blood.  He said he had been to the hospital and they had run some tests.  He said he was supposed to come back in a week.  Our staff took action after a couple of days of him being sick and went to a doctor’s appointment with him.  The doctor told us he had pneumonia and gave us a prescription.  He continued to get worse.  Our janitorial staff reported there were pools of dried blood under his bed.  We took him to the hospital for more tests.  His EKG was way out of whack, his heart was not working properly.  It was our nurse who took him to the hospital.  She thought he would be admitted that day.  He wasn’t.  He was sent back to the homeless shelter.  That same night we had to call an ambulance for him.  He died two days later.

We have a young woman who wants to get help with her addiction.  I watched her struggle to say clean for a week while trying to get into treatment.  A staff member and her attended the hospital with the hopes of getting into the local detox and were turned away.  This young woman then called the next town and put herself on the waiting list for detox there.  She called them daily looking for a bed.  She wanted to get clean and knows she cannot do it on her own (and that we are not qualified or capable to help her in the current setting).  She waited all week.  Then the chance was gone for a while.  She has tried to check herself into the psychiatric ward at least another time since.  She came back to the shelter in tears.  She was called names and put down by the nurses at the hospital.  She was told that she had refused treatment last time she was in (she had waited several hours and had left because she had not seen a doctor yet) and that they weren’t going to waste their time with her again.  Defeated, she told me that she would never go to the hospital again because it wasn’t worth her dignity. 

We have a young man who was admitted into the psychiatric facility for a week.  When he was released from the facility, he came and talked to us about treatment options for himself.  He got himself accepted into a treatment facility in a different part of the province for young men.  He did everything on his own, with our encouragement and guidance.  He applied for extra money on top of his disability cheque to buy his bus ticket and the supplies he needs to attend this treatment program.  The Ministry of Social Development was happy to pay his bus ticket and his food/clothing allowance but balked at the intake fee required by the treatment centre.  It is a private treatment centre so they refused to pay the fee.  Frustrated, he told me he should just hang himself.  I encouraged him to hang on, to let us make some calls.  Our staff called the treatment centre, advocated for him, praised him for taking all the steps on his own, and the treatment centre agreed to take him without the intake fee.  This young man is over the moon happy that he is off to turn his life around.  This is my only success story today.

We have a young man, who struggles with drug induced psychosis (so no help from Mental Health and Addictions because he is the classic example of how the teams cannot work together to help him – is it addiction or is it mental health help he needs?).  When this young man is escalating, the only choice staff have if they are unable to calm him, is to call the RCMP on him and have him removed from our premises.  We try not to call the RCMP on him, as it is a breach of his trust in us as people who are on his side and want to help him, but sometimes it is for the safety of himself and our other guests that we have to make the call.  Last week this young man was called into the RCMP by a community member.  The RCMP were able to get him admitted into the psychiatric ward for 24 hours under the Mental Health Act.  When he returned to the shelter he was incredibly upset that staff would betray him like that.  We assured him that we did not make the call but he was unable to believe us.  Yesterday he assaulted a staff member while in a state of psychosis.  RCMP came and picked him up, and took him back the psychiatric facility.  He was turned away at the door.  RCMP told us that they could hold him for a couple hours but that they would have to release him.  Because he has put our staff safety at risk, he is being denied access to the only home he knows, the shelter.  We cannot allow him in as he is posing a safety risk to staff and other guests.  Our Executive Director is thinking we might have to charge him with assault so that he does jail time, as that is the only safe place for him right now.

This system is broken.  A mentally ill man, who is suffering right now, has been kicked out of the only place in town he is comfortable at all.  He has nowhere else to go.  We are the only shelter.  He does not have healthy family to live with. He is unwell and is unable to maintain his own house.  The psychiatric ward will not admit him.  Mental Health and Addiction say he is not their problem.  Our only option is to have him thrown in jail!  That is the last place we want him to be.  It breaks all of our hearts to have that decision made for us.

It is not the first, and it will not be the last time our guests have to do jail time because of their addiction.  Are there treatment options while they are in jail?  If he does his time can he not get the help he needs while there?  It doesn’t seem to be that way.  Our guests return clean.  Within a couple days they are back into their addiction.  I realize our facility does not help these guests to stay clean as there are so many addicted people around that it can be easy to fall back into the lifestyle. 

We need somewhere where people with addictions can go when they are ready to make a change.  It needs to be immediate access.  At least once a month a client tells us that they are tired of their lifestyle and want to make a change. They tell us that they are heading to the hospital to check themselves into the psychiatric unit.  About three hours later, they return, frustrated, defeated, and often having used their substance of choice quite heavily.  When they get turned away they feel like they may as well enjoy their substance because they can’t get off it on their own anyways.  We had a man who wanted to go to detox.  By the time we were able to get him a bed in detox, and even drove him to the centre, he didn’t want to go.  He was back in town the next day.  I asked him what happened.  He told me “I wanted to go on Tuesday.  By Friday, I didn’t want to go, so I came back”.  When someone wants to make a change in their lives there needs to be immediate access.  People need to be treated with dignity and respect.  They don’t need to be told they are wasting resources.  They don’t need to be called names.  My clients are as entitled to proper medical care as you and I.  I know that the one day I visited the same Emergency Room as my guests do, I waited three hours, but I saw a doctor, he was patient and he did his job.  I expect the same treatment for my clients.  My issue was probably less pressing than the issues my clients show up with, because I know for most of them, previous treatment tells them they will be treated poorly and they only go if they absolutely have to.

It is not okay.  The system is not okay.  Our guests are discriminated against from every angle.  They are on social assistance (and half the world thinks they should be drug tested to receive any money to live on).  Social assistance does not pay enough to live on.  They are addicts and have mental health issues, which is something that scares the general population. (I will admit that before I knew anything about mental health or addiction, it scared me a little too).  Society looks on our guests with disdain.  In conversations we hear a lot of “them vs us” – those people do blah, blah, blah.  Our guests are ignored when they go places, or treated rudely and threatened with RCMP.  In the six months I have worked at the shelter, our people have been told they cannot hang out here but over there.  This changes the next month and they get kicked further away.  Currently, they are allowed to gather on a sandbank on the river.  I am waiting for an accident where one of our guests falls into the river.  We are looking for a new facility as ours is beyond repair.  We have a location in mind, but our neighbours, Mental Health and Addiction do not think we are good neighbours.  Wouldn’t it be interesting if Mental Health and Addiction could see what we see in our guests, and be close enough to make meeting the client easier for the client?  I did not expect resistance from agencies I see as on our side, our partners.  Our guests have stories that will break your heart if you are willing to listen.  Our guests deserve the same treatment you and I expect.  I am so frustrated for them.  The system is broken and our guests suffer the most.