We saw the pediatrician today. He actually let me talk today, and I sidetracked him enough that he didnt give me hell about the minimal weight gain (a year ago we had no weight gain, so some is still better!), he didnt give me hell about not seeing the pg hospital dietitian (we are seeing one in Quesnel). But he also didn't support a single thing I said. The fact that Illyana is on an all milk diet at 21 months meant nothing to him. It didnt scream sensory issues or anything. It certainly could not mean Autism in any way shape or form. When he heard she doesn't sleep he blamed it on the co-sleeping. I don't think he appreciated me saying the co-sleeping is a product of our 3 week hospital stay that traumatized her, but it is. He told me to sleep train, cry it out method. Apparently it means nothing that Illyana wakes up screaming 2 or 3 times a night whether I am sleeping beside her or not. That it can take an hour to calm her down. Instead he heard that she wants to play and talk to me because I am there. She hasn't played in the night in over a year. He somehow heard that I dont sleep well sleeping beside her so everything will be fixed if she screams for 8 hours. Part of our cosleeping is that I am already exhausted and we sleep a little better beside each other. I was sleep training before I went back to work for reason. And the fact that we have never slept through the night is certainly not a sign of Autism either. I said that she is no longer doing things she was doing 2 months ago. He shrugged it off. He asked if I was working with the CDC because they do great work. I said yes and that the CDC agreed it could be Autism. I said my daycare scored her in the high risk category for Autism. Nope, Autism is not a possibility. I said I was hoping to do a private assessment. He said you can't test this young. I said the research says you can test by 2 years which we are coming up on. He disagreed. I said I have talked to the clinics and they said I can but I need a pediatrician and speech language to agree with me. He said you cant.
He can disagree all he wants, we already have a referral into the assessment clinic. I dont need him for that. We will just have to wait in line and not pay for an assessment. She will only be 3 when our time is up, so we are still ahead of the game, I just want to give her everything we can now. I hate waiting 18 months to be able to put the services I believe she needs in place. We could probably pay out of pocket for the services instead of paying out of pocket for an assessment though. It's just so frustrating to me. He knew I knew more about toddler autism than he did so he had to stay in charge. Also, he has never done any of the assessments she would need for him to say it could be. He has never looked at anything but her weight. He didnt care that she snored or was always sick or doesnt sleep well or anything else I might bring up. He has always just looked at her weight. Today was the first time we had a real discussion so that is a win ...
He acknowledges that she is a challenge. He said she is "just spirited". He also said that she will likely remain a small eater and a small child and that's just who she is. I have to agree with that, I feel like I have been saying that for a year.
Back in 6 weeks for another round with him.
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